I have been in this bed for seven days straight this time. I am fortunate that I have carers coming in twice a day to help with my personal care, so atleast I do feel clean.
I was unable to have any light at all until late yesterday, and can now stand some light but my eyes are getting tired very quickly.
Symptoms of this crash
Tinnitus that I always have has increased in volume
Increased sensitivity to smells, noise and light
Feeling dizzy from ortho static intolerance (when I move to sit up my heart races leaving me feeling dizzy)
Increased pain in my hips, back, neck, legs and arms
Fatigued quicker than normal for me. Even holding my phone up to write this has caused my arm pain and fatigue.
Very poor sleep due to the increased pain, then, as usual, waking just as tired as before I slept
I can barely concentrate on anything
Very tearful and down
Having my hair washed makes me feel a bit better after going for months last year without clean hair, but today I have no energy to even contemplate having a shower. I need a rest but can't rest because my daughter is home with just me. Also I am getting such pains in my legs that painkillers and my usual Meds aren't touching.
On top of this, I am still getting attitude from social services regarding my complaint. Plus waiting for a social worker to finish my children's ehcp applications. Plus I need to chase up the department who process ehcp applications because they are all running late again. I wish people woukd just do their jobs properly and within the law, then life would be so much easier, and my little energy coukd be used for things I enjoy instead of wasting it on them.
I am looking online now and then, when I can stand the screen without being too nauseous, for somewhere for help with the depression that comes with ME. It is something I am battling against anyway, but a flare makes it so much harder to stay on top of. It is a good job I can't get out of my own bed without a carer.
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